Quick update...

I'm going for my blood test tomorrow morning to check my cortisol again. Then soon after, I'll do a phone MEDEM with Dr. L to talk about the results and the few questions I have. My only concern is that he's not running an ACTH level. Isn't this disease all about that level?! So I'm trying to make an appt with my PCP to have him run an ACTH. If I can't get him to do it before my medem with Dr. L, I'll just ask Dr. L to do one then. I know how he'll react tho, saying that if my cortisol is low, I'm still ok and won't need to check my ACTH. Those of us that have Cushings, know otherwise. I'm getting up bright and early now, so I'm sure my cortisol is up there to make me get up. It's always been the ACTH I'm worried about. *sigh* I'm sure it will all work out. I'm not worried about it per se, more like frustrated.

But I do have my date to go back to Seattle. Nov 16th. I'll have an MRI then, a CST done to check my adrenals, and of course bloodwork to check pit function in general. We're hoping it works out that my mom can come with again. It's nice to have her company there.

As soon as I get my my bloodwork results, I'll post again.

Back from Washington, DC!!

Just took a 4 day trip to DC. Talk about a LOT of walking and a HORRENDOUS amount of heat there! I actually had to slow down a LOT and probably drank over a gallon of water a day. (Drank about half of my sons bottle of Gatorade too.) I did good tho! I was out like a light at night and slept good and was up and ready to go the next morning! I ended up taking my meds at about 7-7:30am, so I could eat before we were out the door by 8:45am.

We took the metro train (think subway) into the city and that was cool. Well it was hot as heck down there and there was a TON of people going to work, so it was a madhouse...but it was interesting to see nonetheless. Much nicer than the NYC subway stations too I might add!! The hotel and the museums were nice and refreshingly cold and all the stuff we saw was great. I wish the kids would've understood a lot more, but they got the basics.

We also took a bus tour, which was good for me to ease up on all the walking and that was very informational too. The one thing I wanted to see and didn't, was the White House. I was sooo bummed! I think I got a quick snapshot of the white house, but if you didn't know what it was, it would just be another scenery shot!!

Overall, I'm still feeling good tho. Ate way too much, and the food wasn't even all that great! My wrists are still acting up here and there, but for the most part, I only wear my braces at night. I tried to go w/o them one night and within hours my wrists were popping all over. It was a very uncomfortable feeling. So now I don't go to sleep w/o them.

I should be getting my blood test done next week to check my cortisol, then doing a MEDEM with Dr. L. We'll talk about my freckling and see what comes next. Then school starts in 2 weeks and the kids go back and it'll be quiet around here again!

Crazy overly eventful week!

Since Saturday night, I have not felt right. Upset stomach, weak, dizzy, and just overall blah... I have very little appetite and what I do eat seems to go through me.

Last Saturday, we went to Great Adventure. We had a great time and I did fine walking around. I even went on a few roller coasters, none real big tho. But of all things that affected me, it was the tea cups ride. The spinning set it off. I've never really had issues and maybe it's an age thing more than anything, but OMG I felt AWFUL when I got off that thing. Like I just wanted to lay down and sleep. And at the same time I felt sick to my stomach. I should've stress dosed at the time, but I figured it would go away. It didn't. So I took 5mg of hydro and went to bed. I was out like a light!! The next day I felt ok in the morning, just weak and a little queazy. I didn't do much at all, laid around most of the day and did go in the pool a bit later in the evening.

Monday and Tuesday, I hung around the pool with the kids, cuz it was so hot, for the first time this summer. I felt ok, but just didn't have an appetite. And when I did eat, I felt nauseous. Wednesday, we go to my IL's, where all the cousins, grandkids, etc get together to swim. Well of course it was raining that day and it was terribly humid. I don't do well in the heat. Again, I felt horrible when I got home. So bad, the kids had to feed themselves cereal for dinner. We all went to bed at the same time, cuz I just could not stay awake. My body needed to recoup again.

I was worried this morning, that this icky feeling would continue. I went ahead and took a full 20mg this morning in hopes that helps. Thankfully it did. I ate a little more today and no runs. I made sure to eat bananas and drink some Gatorade to help. I think it all did.

I know I did a LOT. I guess I still don't know my limits. I also just think maybe I ate something bad too. Or maybe too much sun?? I don't know. But all day today, I just sat around and really did nothing. It was raining out, so no pool time. I definitely needed that "down time." Hopefully tomorrow, I'll be raring to go again!! But I'll know to slow down a little and rest more!

14 month post op update!

Sorry I've been slackin'!! July was a busy month for us! Lots of playdates, vacation etc. The kids and I flew to Chicago to see my parents for 10 days. We had a great time! It finally hit me about something tho. Whenever I get stressed out, overdo it for the day, get worked up or upset about something, (or even have the runs in the worst way *blush* ) my body just gets REALLY really tired. All of a sudden I just feel like I could sleep, as if my body is saying "Quick! Shut down to recoup!!" hehehe!! I would be out like a light! Happened quite a few times while I was away. I've noticed it at home, but it wasn't as obvious I guess.

But I was totally fine on the whole trip and even enjoyed a good walking through the city of Chicago with my brother and a tour through the Harry Potter Exhibit. It was awesome! And then when we got home our inground pool was finished being built and we've been swimming in it whenever the weather allows! But the one downside is I'm freckling a LOT! Just another thing to worry me. I'm not having any other symptoms, but all over my face are these freckles!! My mom and even some of my friends think they look good on me, but I've never had them in my life!! So of course since my ACTH has been high, that's the first thing I think about vs the sun. Yeah, I've been spending time in the sun, but yes, my ACTH is up there. I dunno. I'm trying to get ahold of Dr. L to get a cortisol/acth level checked. It's been over 3 months, so it's time.

Other than that, we have another little vacation planned. Hubby and I are taking the kids to Washington DC to the museums and whatnot. Should be fun. Then school starts for them not long after that. I'm hoping to get back out to Seattle in November to get my yearly MRI and an adrenal stim test done. Waiting to hear back about that as well.

Overall, everything is still good! Really trying to enjoy my summer this year!! :D