A few ramblings

Well I didn't go Thurs to get my blood done like I said I would, but did go on Friday. I went early too, as I just wanted to get it done. But wouldn't ya know it, after I came home from taking the kiddos to school, I had a message on my machine. It was from the lab, saying they messed up and missed a test. Turns out they forgot to take my 'Renin' levels as asked for. So I looked it up online and saw it related to cortisol and aldosterone. Well when I got out of the lab the first time, I had taken my hydro. So I asked them if taking the meds would mess with the results. They swear it won't. But I want to know how do they know for sure. Are they doctors? NOOOO. So with my luck it will be all screwed up. Hopefully my local endo won't go by that alone anyway. I didn't want to go at all, but did. Now it's all done. And I wait. March 4th. Seems soooo far away, for just over a week away.....

Getting more bloodwork

I need to get more bloodwork done for my local endo. But I'm so nervous, I can't get myself to just get up and go. I don't know why I feel this way exactly. It's not even that I think it's the pit Cushings, I'm actually still worried it's ectopic. My last ACTH level was 22, with high range of normal being 48. I'm already half way there. What if the level goes up higher? Does that mean something? And then what if my cortisol is higher then the 2 it has been and the ACTH is high too. Oh the horrid thoughts that go through my mind.

Then on top of that I get paranoid that I drank caffeine or had chocolate (which has caffeine) etc. Don't want to do anything that will raise my cortisol anymore than necessary. I am also coming down with what I believe to be a chest cold. Again thinking the worse that maybe it's lung cancer, but the yellow mucous is telling me it's probably just a cold. You can see where my mind is going nuts tho.

On top of that, I've only been taking the estrogen cream for a week, and I'm already getting cramps. I haven't felt them since before surgery, so I'm not sure if it's good or not. I think it may be, but again, it's got me somewhat worried. Maybe I should've just titled this post "paranoid." Grr..

Ok, I'm going tomorrow to get my bloodwork done once and for all. I will have ALL my hormones checked and we'll know everything in the next 2 weeks. But ooohhhh boy will it be the longest 2 weeks.........

Quick Update!

Just wanted to post that I finally got back my lab results for my thyroid and GH. Turns out the dosage I'm on for thyroid is fine, levels are middle of normal range. Not what I expected, but I guess that's good. Still have days I feel like I'm cold, but maybe I'm just cold.

My IGF-1 unfortunately was still low. It was 50 before I started the Growth Hormone shots, but it was only 100 on the shots for the last 8 weeks. The low range of normal was 109. So you can see I'm still low, and so did Dr. L, which is why I need to up my dosage from .2mg to .4 and see how that does. I'm hoping I don't have to give myself 2 shots, but time will tell.

Otherwise I feel pretty good. I can't imagine how much more energy I will have upping my GH. I feel like I have more energy than I've had in a LONG time. Still have some small muscle aches, but we'll see. I will be going to get another set of bloodwork done for my local endo next week. Hopefully that will give me some comfort finding out what my cortisol #'s are. I'm getting paranoid. I hate that feeling. Nothing specific is going on, just little things like my neck aching and some headaches. I think it's estrogen and whatnot related, because I just started a new cream (no more pills yeah!!). But still. Peace of mind is a big thing! hehe!

Happy Birthday to ME!

Yep, it's my birthday today. The big 36. I'm just happy to be alive, cuz last year I wasn't quite sure I'd make it this far.

Anyway, nothing really going on. I got some blood checked today. Only thyroid and GH. Dr. L wouldn't check my cortisol or ACTH yet. Says it's too soon since we just checked in in Dec. Would really make me feel better, but nope. This is just a test to see if I need to titrate meds again. Fine. I have an appt with my local endo in March and I have to do a full hormone panel for her, so I get it done anyway. :P

I'm also a little bitter, because now Dr. L is telling me I don't have to come out til next December. Really. For an MRI (which I just did here in Dec) and to have more blood taken. Honestly, IMO, what a waste. I want to keep him as my endo because I'm still worried about all this, but can't we just communicate long distance? Since that's what we're doing now??? I don't know what to think or do. I had planned on going out early, but he said no - it wasn't worth it. By that time we should have titrated all meds to the appropriate dosages. Probably true, but still. I can tell you one thing, I'm not going in Dec. I will definitely go before then, if I DO decide to go, one way or another.

Anyway, I'm not doing anything overly special today. Hubby has grad school tonight after work. So we'll do something together another day. The kids are cute and made me a few things and a card, which makes my day. I'm also planning on going out with one of my best friends and her twins for dinner tonight. Two adults and four kids...should be fun!! :D