Tuesday, April 30, 2013

40 and Fabulous!!

Sorry again that I haven't posted in quite some time! Things have been going good and busy as well, so not much time for posting.  I have a few minutes to spare before I make dinner, so I thought I would do a quick update!

So I officially turned 40 in February.  Not overly excited about that and at the same time, I'm glad I'm still around! I know before my pit surgery and even my CSF leak repair surgery, I was worried something horrible would happen.  I hate when they mess with anything near the brain.  But all is well and I had a fabulous birthday! My husband was unbelievably sweet and threw me a surprise birthday party! It was awesome and an absolute surprise! I had NO idea!! I did end up having to stress dose when I got home, because I thought I had over done it.  It turns out I had was getting an infection.  I ended up losing my voice the day after my party, but it lasted like 4 days, which is unusual for me.  Nothing a quick dose of antibiotics couldn't fix.

I'm also back on my regular dose of hydro - 20mg.  Took me 3 months to wean from 150mg to 20mg.  Those last 10 were a doozy.  My am cortisol is still less than 1, ACTH is 31, my thyroid # 's are in the middle of the range and my GH is at the low end of normal. My ENT says all is well with my CSF leak repair as well.

My twins turned 11 in March and we had a little party for them, but the first week of April (for Spring Break) we went to Orlando, FL as a part of their gift. We went to Universal Studios and LegoLand! It was a blast! I managed to go that whole trip with only having to stress dose once! After almost 5 years, I'm finally figuring out what I can and cannot do.   I was worried about my CSF repair while on the plane, but it was ok.

My kids are both in sports - soccer and baseball - and it's been keeping us busy taking them to practices and games.  My daughter plays travel soccer so our weekends are all over NJ!   They are also both in Honors Band, so that's another day of practice to work in there.  They only have 51 days of school left! Then they move on to Middle School.  I'm NOT looking forward to that.

So that's all with me for the time being! I have to have a - ick - colonoscopy here in the next couple weeks (haven't set it up yet).  So maybe I will post and let you know how my adrenals (or what's left of them) handles that!