"We are the orphans. We are the zebras in a world of horses. The ones who have a rare disease many have never heard of. We have no famous speakers to bring life to our voices. We have no sports stars to put a face on Cushing’s. We have no pink ribbons. We have no simple tests to tell us if we have it. If no one cures us, our lives will be shortened at best and ended at worst." --Steve Owens on "Should Have Seen It"
I felt the need to post this from Steve's blog because he just has a way of saying the way it is and he says it so well. Steve also has Cushings and tomorrow he's going back to surgery to have a BLA (bilateral adrenalectomy). He had a pit tumor, and went through the pit surgery, but unfortunately it didn't work for him. So the BLA is the next step. He will be blogging his surgery and recovery, so if you are interested in reading more about him, check out his blog: "Should Have Seen It." We're thinkin' of ya Steve!
No comments:
Post a Comment